Monday, July 12, 2010

A Date with the Pediatric Neurologist



So today was Naomi's appointment with the neurologist. Since early on, we have noticed that she was exhibiting some weakness in her muscle tone. Not holding her head up, not rolling over, not anchoring down her arms when picked up, not standing when holding her up on your lap, etc. The pediatrician had requested lab work on her and also set up an appointment with the pediatric neurologist.

As you can imagine, we had been anxiously awaiting her appointment today for the last couple of months since it was first set up. I am happy to say that I'm glad the waiting game is over and we can now go on with our lives the best we can.

Today, Naomi was finally properly diagnosed as having Benign Congenital Hypotonia. Essentially, muscle weakness. You can find out more about it here . We have a follow-up appointment for October to monitor her to make sure it doesn't worsen. By all counts, she seems to be just fine. Her lab work came back clean too. But if it does worsen, they said they want to watch it to make sure it isn't a sign of Muscular Dystrophy or Cerebral Palsy. However, we are hopeful (and feel pretty sure) that her Hypotonia is isolated.

So...yay for prayers and well wishes =] Thank you everyone for all you have done in your own way to help us out. We REALLY appreciate it.


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